First my apologies for being off the grid for a few days...This wasn't one of my better weeks...but still no puking so LIFE IS STILL GRAND!!!
This new cocktail is supposed to be totally different in a good way from the last one with a new list of "what to expect" attached to it..
1) it isn't supposed to make me nauseated ---WRONG...3 of my worst days yet!!!
2) your hair will fall out ---WRONG!!
3) make your bones ache like a bad flu ---GOT THAT ONE RIGHT
4) totally change your taste buds again -- YUP...this one too!!
I have spent a ton of time just resting and trying to find food that doesn't gag me from the first bite. VoR was cooking dinner last Sunday and the smell of the cooking rice was my undoing...good thing I had an open window close by...fresh air is for sure my saving grace. I have managed to get outside for a short walk to the mailbox everyday. I have to honest....some days....that 10 houses down seems miles longer then it was the day before...but I still did it....followed by a well deserved nap.
I have been battling with a new side effect this week to.....since my allergic reaction to the cocktail..my skin around my PICC line isn't holding up real well. I have been dealing with a severe rash on that arm and my hands along with running nose and eye issues. Hopefully this won't change anything but we will have to see what the oncologist has to say on the next visit...my home care nurses are sure keeping their eye on it though. It only has to last for 5 weeks...CAN YOU EVEN BELIEVE IT!!!!!! I will still deal with side effects longer then that but the PICC can come out as soon as my last chemo is administered....so they say.
This has not been what I expected at the beginning....not even close!! I hoped and prayed for the best but still expected to be feeling the worst. At this point everyone tells me I look great...I have color, energy, cheerful and bald...I choose to believe them however....they could be fibbing I guess...HMMMM!!!