And So it began

"ONCE UPON A TIME"....there came along this little lump...insignificant really when you compare it to the entire world of lumps. That is, right up to the point that it wasn't...insignificant I mean............... and so began my journey.

A NEWER SHADE OF PINK...now I more then SURVIVE...I am learning to THRIVE...

OF COURSE... we all know things are bound to get a little crazy with a surprise around most every corner...not to mention an assortment of bumps and bruises along the way...but I am ever thankful for them all...they have all made me who I am. So buckle up, hold on tight and enjoy the ride thru what I lovingly refer to as LIFE


Wednesday, July 26, 2017

AND SO IT CONTINUES....

There has been so much craziness happening in the last month...I don't even really know how to catch up.  It has been such a continuing gong show adventure... it's hard to believe it all and it's all been  happening to me!!! I will do my best to just stick to the "Highlight Reel" and give you the readers digest condensed version or I could be blogging non-stop for days to try and catch you up on all the details.

Days 30-37 - This time slot was actually pretty unremarkable filled with daily home care nurse visits which, BTW are not all created equal.  There have been some good some....some interesting to say the least...but I found an absolute gem and so I called my care coordinator and had Miss C assigned as my primary care nurse....so when she is working I get her.  The continuity of care has sure made it better for me & especially my poor skin. I react badly to most dressings & bandages so I am the 1% that makes her work more difficult...I wouldn't trade her for the world!!!!!

So I followed up with the ID (infectious disease) doctor & he was pleased with the way it looked but still extended my IV antibiotics to Aug 18th ....ARGG!!  He wants to be sure it good and gone and I can't fault him for that....I will just continue with the "pioneer basin bathing" a while longer....sigh!!!  So his nurse replaced the dressing on the drain (I don't think she had it much experience) and managed to kink the tiny drain hose coming out of my chest completely in half.  I didn't realize that until hours later when I realized there wasn't much in the drain bag and I was starting to feel puffy in the right armpit.  VoR discovered it at supper time and did his best to try and straighten it and tape it in a better position.  Sadly that kink had damaged the hose and we completely lost the suction so the drain was useless.

Over the next 3 days, super nurse Miss C, did her best to try and get it to work but by Sunday she told me to go to Emergency and have it checked because it had been just back flowing all the infection back into my chest...KRAP!!  We all know the last place you want to be is ER especially with a huge infection, knowing it's gonna take hours & let's face it....you're gonna sit there for HOURS.  Apparently...a PICC line in one arm, a chest drain in the other side & having ID paged (as per their instructions) gets you moved up the line at light speed.  Unfortunately for all involved & me...there were 7 multi trauma car accidents that same afternoon & Trauma Trumps Everything...as it should.  So I was away from the masses but still sat for a few hours as they dealt with the trauma patients and when all the doctors got to me they decided that the quickest way to deal with the pump was to go back to the Breast Centre and have them book me into the specialty (angio) clinic and have the drain replaced tomorrow. So off I went with a ton of pressure in my swelling chest, looking forward with baited breath till the next day.   

WAS IT GONNA TURN OUT THAT SIMPLE.....
OF COURSE NOT....

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