So Monday morning rolls around and VoR, me & the Empress of Awesomeness...who btw have been having WAY too much fun going off doing the "touristy" stuff with her dad and sitting with me binge watching 2 seasons of Poldark (look it up...very good period piece...as is usual from the BBC). It has been such a blast having her home again for a few days....AND she made me pickled carrots!! Be still my heart....now we just sit and wait 2 months to eat them....sigh.
Anyway...back to Monday. It 's just your typical "quiet off chemo week" ...NOT. I started off the morning with my surgeon to just check on a bit of redness and swelling on the infected side to see if any draining was needed....I didn't think so but with it getting red and warm again...I wasn't taking chances. She decided that it was okay and just keep an eye on it and to NOT over work that right arm. Over-due anything....who me!?!?! She must know me cause she made me pinky swear that I would, in fact behave. I did get her to STAT order a new PICC for me before Thurs which she immediately did. Then we were off to the Oncologist for my "finished 1st chemo round" follow-up. She took one look at the redness and swelling and got ID on the phone to have me seen before she would allow then next chemo round. I love her....she is soooo meticulous and thorough I have complete trust in her. She STAT ordered a PICC too...lol. We have to stick to the chemo schedule though cause Random Wisdom arrives on my "Off chemo wk" so I can keep her pregnant little belly and that adorable 2yr old "flighter" as far away from this toxic blend of nastiness as possible!!! The Doc did go over all my last scans and tests etc and NOTHING is showing up so it would appear that once again....we caught that miserable little troll in his tracks. I don't want to be doing this every 5 yrs....but I love that we are catching him so quickly.
By the time we got home there was a message with an appt time for ID the next morning at 10:30. Just how I wanted to spend my OFF week...sigh. By that morning the redness was mostly gone but the ID doctor didn't like how the chest wall is still soooo red and hot and angry looking and decided to switch up my antibiotic....I should have warned her about my 2% reputation. 15 minutes into the infusion I'm coughing and sounding hoarse and my eyes are a bit funky around the edges and the IV site is burning....yup they stopped that pretty quick. She asks about the PICC...I told her Friday unless she wanted to make a call...she did...9am tomorrow morning!! Take that Friday being the earliest appt!! She obviously wields a lot of power...I am not complaining!! The decision is made to come back to ID after the PICC and try the new drug again over a 2hr slower infusion and thru the PICC and see how it goes. She calls 2 hrs later saying she has changed her mind and that we are just gonna add an extra dose to my existing antibiotic so it is every 6 hrs not every 8 and then come back to see her in 2 wks. I hope this gives it a boost cause it is not looking like much has changed in either the look or feel of it in a few weeks and if this stuff isn't doing any good....lets not just take it for the fun of it....time to reevaluate things
So here I sit half way thru my 2nd round ...still feeling really good and honestly if it wasn't for the battery pack and antibiotic bag or the PICC in my arm....I could totally forget I am sick and fighting the Troll again and infusing copious amts of chemo drugs. I am hardly nauseated at all but really tired...Pooped or Puking...a serious...
And So it began
"ONCE UPON A TIME"....there came along this little lump...insignificant really when you compare it to the entire world of lumps. That is, right up to the point that it wasn't...insignificant I mean............... and so began my journey.
A NEWER SHADE OF PINK...now I more then SURVIVE...I am learning to THRIVE...
OF COURSE... we all know things are bound to get a little crazy with a surprise around most every corner...not to mention an assortment of bumps and bruises along the way...but I am ever thankful for them all...they have all made me who I am. So buckle up, hold on tight and enjoy the ride thru what I lovingly refer to as LIFE
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